I think I’m just another ordinary guy, but it seems some people think I might be a little bit special, why I guess it’s because I’ve now had a number of doctors say in so many words “how are you still alive?” and if you read my medical notes you wouldn’t be able to reconcile the person you see with the person described in the notes. I’ve been living with a rare form of cancer, Appendix cancer and yes there is such a thing! since January 2007, had 3 major surgeries, numerous procedures on my Liver (it’s now the main area of concern) and come close to dying once when the recurrence came back suddenly and with a vengeance.
Currently I have several enlarged lymph nodes the worst ones being behind my liver but also several others in the chest area and around my collar bones, I have multiple micro tumours in both lungs, a number of lesions on my liver and most recently a possibly lesion on my L1 vertebrae. I’ve been doing chemotherapy every 2 weeks for over 3 years and will continue to do so for the rest of my life.
Appendix cancer is classified as a rare cancer, used to be thought of as 1 in a million disease, though these days I think it’s now about 1 in 250,000 as it now being more widely recognised.
I didn’t stop at one rare condition, I also have a condition called “Free Protein S Deficiency” yet another 1 in a million condition. This condition is a blood disorder that makes me prone to getting blood clots as a result of this I have to take anti-coagulant (blood thinning) medications every day to reduce the risk of getting blood clots.
What will you find here … A mixture of things, some posts will be about my current day to day life, some will be historical posts covering what has gone on before, some may be factual posts about the technical aspects of life with cancer and just for fun there may be some random posts.
Oh the picture at the top of the page is me skiing at the Matterhorn with active cancer whilst doing chemo just to prove that having cancer doesn’t mean you can’t still have fun in life.